In 1992, Dr. Mike Tranfaglia’s son Andy was diagnosed with fragile X, a rare genetic disorder that causes mild to moderate intellectual disability. This diagnosis led Dr. Tranfaglia and his wife, Katie Clapp, to found FRAXA Research Foundation (www.fraxa.org), a nonprofit organization focusing on finding a cure for fragile X. As part of its research strategy, FRAXA has made a significant investment in repurposing research, which is why Cures Within Reach awarded FRAXA with the Golan Christie Taglia Patient Impact Philanthropy Award at the 2017 Global Health Repurposing Awards.
The mission of Cures Within Reach is to improve patient quality and length of life by leveraging the speed, safety, and cost-effectiveness of medical repurposing research to help drive treatments to patients. “This is a great honor for FRAXA, and great encouragement to us individually. We spend a lot of time working on a rare disease in relative obscurity, and so this recognition is important to us,” said Dr. Tranfaglia. Read full post!